A life less lived

Is it really August?

I can't believe the summer is half over. I will miss the time I get to spend with Autumn. starting school full time in September is a big deal for both of us. On the other hand getting her back into a routine will be very welcomed. I have tried every trick in the book and three out of four therapy sessions Aiden has per week she has been acting out. I can't wait to have that stress resolved for both of us.

I don't know where the last five years have gone. She will be in the "big school" all day five days a week for the next thirteen years! With this reality looming overhead I have found myself hugging her more and enjoying our time alone when Aiden is napping. I'm going to be a wreck that first week.

Aiden is really getting around now. Gave Mike and I a run for the money tonight . Took him and Autumn to a magic show (without our trusty stroller) and he was off and running. Explored the entire place never looking back once. Cried when we actually had to sit down for the show. Daily tries to climb anything he comes in contact with. Has mastered the couch climb much to the dismay of our old blind dog. She now has to share her favorite spot to sleep with a roudy toddler.

Actually managed to get some weeding in the vegetable patch done today. (Thanks Grandma and Papa) The kids were being well cared for and I snuck out for a ten minute breather. The tomatoes are the size of softballs, more cucumbers than I know what to do with, pick and actually cooked our eggplants for dinner tonight. Gardening has saved be a wallet full of cash on therapy and drugs!!! What will I do when the winter rolls around? LOL

I love my Zombie

4:51 PM Edit This 2 Comments »

I can't believe it has been so long since I blogged. I think about it every night but never get around to it. So much has happened in such a short period of time . We had our dermatology appointment and he said it is just a benign birthmark and we should not worry about it. The nephrology appointment showed his kidney is actually getting better on it's own (yipee) the blood work was a little off but surprisingly it was not his calcium levels. I have to email Dr. Morris some questions. Our pedia. didn't answer my questions and just said we will retest next time(6 months from now) we come in. We had a great visit with our cousins. A house full of kids was a challenge but we survived. Five kids under the age of five for four days over the holiday weekend! Had fun at the petting zoo, kids museum, and beach.

Aiden had his speech eval and we are still waiting to hear the results. This monday he decided that he was going to take off walking of all places in Chucky Cheeses! I guess the lights and spinning things were his inspiration. His walk resembles a zombie rising from the grave to take over the local mall. He has been walking more than crawling since then. I now know how he got on the couch.He figured out that if he pushes his train next to the couch he can stand on it and climb on ! Yeah for me!! Turned my back for a second and he was standing on the edge of the couch.I am so proud of him but something tells me I'm in for trouble!

Just about all my friends and relatives know by now that Aiden has Williams. It was definitely a process. I chose not to tell the moms I am briefly acquainted with because I don't want to have him be judged . He is just Aiden and that is all for now.

Amazing

6:53 PM Edit This 2 Comments »

How did he manage to climb up on the couch? Still don't know! Dermatologist appointment went well. Nothing to follow up with. Horray. We have been sooooo busy and he has been so incredibly good. Very little complaining about all the running around and not sticking to our schedules. My little munchkin is starting to look more like a little boy and less like a baby.

I need a vacation.

4:49 PM Edit This 3 Comments »

Happy Birthday Autumn. I can't believe you are five already.

What a week. So tired. Aiden's IFSP was this week. Keeping all services and adding speech therapy. Might be adding hippotherapy and movement group to the list.

Both kiddos saw the dentist for a cleaning

Took Autumn, Aiden and a few close friends to the children's museum today. Needless to say the kids fell fast asleep tonight. Darlene Graham performed a concert at the museum. They invited all the kids on stage , of course Autumn was the first one up each and every time. Aiden enjoyed the music and watching the kids. Really hated the song that involved all the kids in the audience screaming. Come to think of it I did care for it much either! He screamed and cried through that song and was fine the rest of the show.

Poor little man wants to walk so badly. He is so proud when he takes a few steps forward. Mostly he takes one step foward, three steps back and then falls. Some how he managed to get up on the couch by himself. One minute he was on the floor playing and the next he was up on the couch with the dog. When his muscles catch up to his will we will be in big trouble for certain!

Yeah!

8:44 PM Edit This 4 Comments »

Took Autumn for her birthday pictures. She is almost five!. Where has the time gone. As a bonus I got this adorable picture of the two of them together.(See photo at the top) Aiden looking like a farmer boy. He was so good during the photo session. He also amazed me at the Father's Day brunch. Made it through 90 % of the meal before he starting getting fussy. This was a huge improvement over most restaurant trips. I usually dread eating out because it is more stressful on me and forget about enjoying my meal. Hopefully as he gets older and stronger we will keep moving in this direction. He surprised me at the last visit to the pediatric doctor as well. He didn't cry! Maybe because big sis got seen first or because he is just growing and changing a bit. He is giving kisses out upon request now. Very cute. He loves when two people are near him and he gets to bop his head back and forth between us and alternate kissing each of us. A game to him but it melts my heart. He is such a momma's boy.

One of those days

6:52 PM Edit This 1 Comment »

I've stopped worrying about the future. Really can focus on the here and now. Even still there are good days and bad. Only one year since we found about about Williams Syndrome. It still seems like a dream. All that we went through with our baby boy. The scars from two surgeries serve as a constant reminder of how far we have come. He is such a joy. I wait for the day he calls me Mom and means me. Waiting for him to run around the yard. Still not sure why it has to be this way for our family yet I feel blessed to have such wonderful kids. It's just hard some days.

There are parents with kids far more mentally and physically disabled. There are parents that loose kids and those who can't have kids. Very aware of all of that, but I still throw a pity party for myself every once in awhile. I'm sure it's mostly the exhaustion talking. It's been a busy week.

HOT!!

8:36 PM Edit This 2 Comments »

Can it get any hotter here? The kiddies are loving the sprinkler and kiddie pool. Aiden would sit in the pool and splash all day if I let him. He cries any time I try to remove him from the pool or the tub. He took several steps during PT today and started clapping for himself. So close to walking, can't wait. His favorite word is open and uses it all day for anything he comes across. Autumn's officially home on summer vacation. First day home and as expected therapy was rough for her. She wanted to play and be the center of attention. Tried talking with her reasoning with a four year old! Let her play some but she started getting carried away. Grandma suggested computer time during therapy . I'm going to try it tomorrow. I have three months with four days a week therapy ahead and have to nip the issue in the bud now. My poor girlie .