A life less lived

Kentucky

Aiden and I just returned from our Mecca to Kentucky. We met with Dr. Mervis and Dr. Morris. It was our first time meeting Dr. Morris. She was extremely thorough and gave us some good advice. She is concerned with his size (small even for a WS kid) and his low tone. Dr. Mervis suggested more OT to work on the low tone and fine motor issues. We even got to meet a few other kids. There was Hannah (teenager) and a small fry like Aiden named Ella. The other kids I saw in passing. Ella and Aiden shared a snack and Aiden tried to steal her crayons. Sorry I forgot her parents names but it was nice meeting you. We are so busy there for two days that there wasn't much time to talk with you . The traveling was the hardest part. One hour drive to airport ,two hour flight, taxi to motel and shuttle van to the university. I bought a great airplane seat belt harness for kids. It was a life safer , two minutes into the flight and Aiden wanted to "go up". The harness kept him seated and then it was just up to me to keep him entertained. I went through every toy I pack, every snack and I even stooped to barf bag puppets. We survived the flights with minimal crankiness.

TWO

6:29 PM Edit This 8 Comments »

Happy Birthday to my special little boy! Tomorrow is the big day. It will be a family party at home . I'm so done with the hassle and expense of party places. Can't wait for him to open his new toys. Typical boy loves cars. Autumn took her allowance money and went out with Dad today to buy her brother a birthday present. I'm so proud of her.

Next week we are making another trek to Kentucky. Looking forward to it but not the traveling alone part. I always learn alot of helpful information there so it is worth it.

Gerkle,gacker and other cute things

7:27 PM Edit This 5 Comments »

Aiden has started to repeat what we ask him to say recently. Just this weekend we added

Gerkle( which Mike thinks is a cross between a pickle and a circle) for circle and

Gacker for cracker . He has already learned that by saying Peas (please) he gets what he wants.When you ask him to give you a hug he hugs himself and says Aaaahhhh.

So cute.

Did I mention he throws his entire body on the floor and crys for a full five minutes when he doesn't get what he wants???!!!Terrible twos already? It's pretty new so I appreciate him trying to express his feelings and needs. I can see it getting old quickly like if we are in public or if it continues into his teenage years!! LOL

Approaching two

5:11 PM Edit This 1 Comment »

We are approaching two very quickly. Just three weeks away. Recent days are mostly good. Thursday I had an appointment to take Aiden's birthday pictures. I was giving him a bath and found myself taking a good hard look at his scar. It goes from right under his neck to just above his belly button. It has faded in color but curves to the right. There are thicker spots and raised spots. It just struck me as strange that it is just part of Aiden now and I don't notice it much any more. I spent the better half of that morning reliving the surgery nightmare. Days and nights in the hospital and all that we went through. Reaching two is such a victory. He had fun at the photo studio and came home with a great shot of him.

We took the kids to a music and movement class at our library today. It was for 2 to 5 yr olds. Aiden clapped and squealed with delight the entire class. He walked around and greeted all the other parents and then took a seat across the room on the mats to watch all us crazy folk dancing around with streamers and scarves! We let him watch from across the room he was just so happy.He came over to join us when they handed out the sleigh bells and then went back to the mats to sit. Can't wait to start our weekly movement classes. Waiting for approval through our ISEP.

Just as a side bar- there was this terrible little boy maybe two or two and a half years old that was following Aiden and pushing him. I got in his face and said in my most motherly voice"Don't push". His guardian was blind to the matter. The same little rat started pinching Aiden while he was sitting on the mat enjoying the class. I flew across the room and again had to yell at this kid"don't do that". I picked Aiden up and made him sit with me for the last song of the class. At that time I noticed this terror sitting on top of a baby girl that had the misfortune of crawling onto the mat next to him. The entire time what I assume was his grandmother was smiling and clapping along to the music. Are some kids born bad?????I hope my little man won't ever be picked on but if that day comes again I will be there.!!!!!!!Don't mess with the redhead.

how tiny is tiny....

6:33 PM Edit This 7 Comments »

My son is so tiny I am taking IN last years pants! Seriously. I pulled out last years pants because it has been getting chilly in the morning. Not only did I have to take the waist in from last year but for some reason the length is long too. Instead of taking down the hem I might have to cuff them. Is he shrinking? Autumn was wearing 3t's at his age. We skipped all the size 2's all together for her. The good news is I don't have to buy any more winter clothing for him.

Therapy is so much easier now that my girlie is in school. Added speech, yet another service, another person in our home, getting hard to keep up with them all. LOL . I hope looking back on this one day I will say it was all worth it. The new toll is speech, pt , ot, special ed, nutritionist and social worker.

Loosing power

7:56 PM Edit This 3 Comments »

Want to make a quick entry but my laptop is about to die. Autumn loved her teacher. She was excited to go back the next day. Hooray. What a relief. I still miss her being here. The house is soooo quiet without her.

Just making an observation today..... Aiden is so tiny! He is walking around alot better and starting to play and vocalize all day. Watching him walk to bed at night carrying his blankie is just so adorable. He is wearing 12-18 month cloths and he will be 2yrs next month. At his age he has such a tremendous sense of humor. He knows how to make us all laugh. We love our mini man so much.

Sleeeeep

8:11 PM Edit This 2 Comments »

With one day left of summer vacation my brain keeps reviewing the days gone by and reeling over Autumn starting kindergarten. I was up all last night. Where have the past five years gone? I remember so clearly watching her crawl, taking her out for walks in her stroller and dropping her off at my Mom's while I went off to work. I always packed all her bottles and meals to take to grandma's house. I remember crying all the way to work for weeks when I had to go back full time. Now I feel like the next twenty years she will be in school . Kind of going through separation anxiety all over again. She is excited and a bit nervous. I know she will do great. I look back on the past two years with everything Aiden has been through and I hope I have met all of Autumn's needs as well. Poor kid is still attention starved and jealous of Aiden and his therapists. As much as I know I have given her 100% I guess there is always that mother's guilt having a special needs baby. All the stays at the hospital and overnight trips with him to specialists. Now she will be in school all day. On to the next step of the motherhood journey. Sad today but I'm sure by next week I'll have adjusted.