A life less lived

One year ago, April 18th to be exact we were in a hospital in New York. Our baby only seven months old at the time was in the operating room having open heart surgery to repair the pulmonary stenosis and valve issues. The cath they tried two days earlier was unsuccessful. It was a total nightmare, out of body experience. The very next day while our son was still sedated and in critical condition we got a call bedside to inform us he has Williams Syndrome. We spent twelve days in the hospital and finally was able to go home. Home to a new life with a child that has a rare genetic condition. It's been a tough and rewarding year. Challenging my strength and will as a mother and a woman. We go back to the hospital tomorrow for our one year follow up and echo. I dread going back but I am hopeful that everything will be o.k.