My WS family
6:33 PM Edit This 0 Comments »
Glad to have a "family" of WS parents that understand what it is like to have therapists parading through your home everyday. They understand how as a parent your heart stops when the echo machine is fired during the cardio visit. What it feels like to have to inform your family and friends that your child has a rare genetic disorder. How it can test even the best marriage and add another layer of guilt to parenting the sibling of a special needs kid. How we have to fly to Kentucky or Nevada with our kids to get the best medical care!
This blog is not to keep in touch with old friends or create a family keepsake. Won't be published as a novel, won't be lite reading. It is for me to express the ups and downs of dealing with WS.
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