A life less lived

Approaching two

We are approaching two very quickly. Just three weeks away. Recent days are mostly good. Thursday I had an appointment to take Aiden's birthday pictures. I was giving him a bath and found myself taking a good hard look at his scar. It goes from right under his neck to just above his belly button. It has faded in color but curves to the right. There are thicker spots and raised spots. It just struck me as strange that it is just part of Aiden now and I don't notice it much any more. I spent the better half of that morning reliving the surgery nightmare. Days and nights in the hospital and all that we went through. Reaching two is such a victory. He had fun at the photo studio and came home with a great shot of him.

We took the kids to a music and movement class at our library today. It was for 2 to 5 yr olds. Aiden clapped and squealed with delight the entire class. He walked around and greeted all the other parents and then took a seat across the room on the mats to watch all us crazy folk dancing around with streamers and scarves! We let him watch from across the room he was just so happy.He came over to join us when they handed out the sleigh bells and then went back to the mats to sit. Can't wait to start our weekly movement classes. Waiting for approval through our ISEP.

Just as a side bar- there was this terrible little boy maybe two or two and a half years old that was following Aiden and pushing him. I got in his face and said in my most motherly voice"Don't push". His guardian was blind to the matter. The same little rat started pinching Aiden while he was sitting on the mat enjoying the class. I flew across the room and again had to yell at this kid"don't do that". I picked Aiden up and made him sit with me for the last song of the class. At that time I noticed this terror sitting on top of a baby girl that had the misfortune of crawling onto the mat next to him. The entire time what I assume was his grandmother was smiling and clapping along to the music. Are some kids born bad?????I hope my little man won't ever be picked on but if that day comes again I will be there.!!!!!!!Don't mess with the redhead.

how tiny is tiny....

6:33 PM Edit This 7 Comments »

My son is so tiny I am taking IN last years pants! Seriously. I pulled out last years pants because it has been getting chilly in the morning. Not only did I have to take the waist in from last year but for some reason the length is long too. Instead of taking down the hem I might have to cuff them. Is he shrinking? Autumn was wearing 3t's at his age. We skipped all the size 2's all together for her. The good news is I don't have to buy any more winter clothing for him.

Therapy is so much easier now that my girlie is in school. Added speech, yet another service, another person in our home, getting hard to keep up with them all. LOL . I hope looking back on this one day I will say it was all worth it. The new toll is speech, pt , ot, special ed, nutritionist and social worker.

Loosing power

7:56 PM Edit This 3 Comments »

Want to make a quick entry but my laptop is about to die. Autumn loved her teacher. She was excited to go back the next day. Hooray. What a relief. I still miss her being here. The house is soooo quiet without her.

Just making an observation today..... Aiden is so tiny! He is walking around alot better and starting to play and vocalize all day. Watching him walk to bed at night carrying his blankie is just so adorable. He is wearing 12-18 month cloths and he will be 2yrs next month. At his age he has such a tremendous sense of humor. He knows how to make us all laugh. We love our mini man so much.

Sleeeeep

8:11 PM Edit This 2 Comments »

With one day left of summer vacation my brain keeps reviewing the days gone by and reeling over Autumn starting kindergarten. I was up all last night. Where have the past five years gone? I remember so clearly watching her crawl, taking her out for walks in her stroller and dropping her off at my Mom's while I went off to work. I always packed all her bottles and meals to take to grandma's house. I remember crying all the way to work for weeks when I had to go back full time. Now I feel like the next twenty years she will be in school . Kind of going through separation anxiety all over again. She is excited and a bit nervous. I know she will do great. I look back on the past two years with everything Aiden has been through and I hope I have met all of Autumn's needs as well. Poor kid is still attention starved and jealous of Aiden and his therapists. As much as I know I have given her 100% I guess there is always that mother's guilt having a special needs baby. All the stays at the hospital and overnight trips with him to specialists. Now she will be in school all day. On to the next step of the motherhood journey. Sad today but I'm sure by next week I'll have adjusted.

Is it really August?

7:02 PM Edit This 5 Comments »

I can't believe the summer is half over. I will miss the time I get to spend with Autumn. starting school full time in September is a big deal for both of us. On the other hand getting her back into a routine will be very welcomed. I have tried every trick in the book and three out of four therapy sessions Aiden has per week she has been acting out. I can't wait to have that stress resolved for both of us.

I don't know where the last five years have gone. She will be in the "big school" all day five days a week for the next thirteen years! With this reality looming overhead I have found myself hugging her more and enjoying our time alone when Aiden is napping. I'm going to be a wreck that first week.

Aiden is really getting around now. Gave Mike and I a run for the money tonight . Took him and Autumn to a magic show (without our trusty stroller) and he was off and running. Explored the entire place never looking back once. Cried when we actually had to sit down for the show. Daily tries to climb anything he comes in contact with. Has mastered the couch climb much to the dismay of our old blind dog. She now has to share her favorite spot to sleep with a roudy toddler.

Actually managed to get some weeding in the vegetable patch done today. (Thanks Grandma and Papa) The kids were being well cared for and I snuck out for a ten minute breather. The tomatoes are the size of softballs, more cucumbers than I know what to do with, pick and actually cooked our eggplants for dinner tonight. Gardening has saved be a wallet full of cash on therapy and drugs!!! What will I do when the winter rolls around? LOL

I love my Zombie

4:51 PM Edit This 2 Comments »

I can't believe it has been so long since I blogged. I think about it every night but never get around to it. So much has happened in such a short period of time . We had our dermatology appointment and he said it is just a benign birthmark and we should not worry about it. The nephrology appointment showed his kidney is actually getting better on it's own (yipee) the blood work was a little off but surprisingly it was not his calcium levels. I have to email Dr. Morris some questions. Our pedia. didn't answer my questions and just said we will retest next time(6 months from now) we come in. We had a great visit with our cousins. A house full of kids was a challenge but we survived. Five kids under the age of five for four days over the holiday weekend! Had fun at the petting zoo, kids museum, and beach.

Aiden had his speech eval and we are still waiting to hear the results. This monday he decided that he was going to take off walking of all places in Chucky Cheeses! I guess the lights and spinning things were his inspiration. His walk resembles a zombie rising from the grave to take over the local mall. He has been walking more than crawling since then. I now know how he got on the couch.He figured out that if he pushes his train next to the couch he can stand on it and climb on ! Yeah for me!! Turned my back for a second and he was standing on the edge of the couch.I am so proud of him but something tells me I'm in for trouble!

Just about all my friends and relatives know by now that Aiden has Williams. It was definitely a process. I chose not to tell the moms I am briefly acquainted with because I don't want to have him be judged . He is just Aiden and that is all for now.

Amazing

6:53 PM Edit This 2 Comments »

How did he manage to climb up on the couch? Still don't know! Dermatologist appointment went well. Nothing to follow up with. Horray. We have been sooooo busy and he has been so incredibly good. Very little complaining about all the running around and not sticking to our schedules. My little munchkin is starting to look more like a little boy and less like a baby.