Slideshow
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Wow it was easier than I thought it would be. My very first slideshow!! I love my babies.
My Baby
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My Heros
A life less lived
At 7 months old we found out our son has Williams Syndrome.
Littlest Hero Project
My Heros
Williams Syndrome
Williams Syndrome is a rare congenital disorder caused by the deletion of elastin and approximately twenty other genes on chromosome #7, and is characterized by a striking mix of physical and developmental characteristics. Common problems include aortic /pulmonic stenosis, kidney problems, hypercalcemia,hernias, high blood pressure and developmental delays.To find out more about Williams syndrome visit www.WilliamsSyndrome.org
My Bloggy Friends
Aiden
Autumn
Aiden's Second Birthday
About Me
- Guanogirl
- Married for eight years. Two wonderful kids and a very old chihuahua
My WS Friends
3 comments:
I so relate. This is why I just quit my job at the daycare. I don't know if I can ever bring myself to work with other woman again. I just have bigger fish to fry. Praying for your mom.
"Your work is to discover your world and then with all your heart give yourself to it."
-- Buddha
I think you are so incredibly brave by bringing another viewpoint to others. I still find it very hard to talk to others about WS unless I am behind my computer. I hope I can do that someday. Here's to laughing off the small things like free coffee and the snags we encounter every day. We have special powers now, so we can do that!
I can't even talk to my old friends from Philly on the phone not to mention in person, nor can I seem to make any here for the same reasons you mentioned. I try really hard not to let those silly rants get to me but it doesn't work even when I tell myself that someone out there is going through something worst than you are so don't pay them no mind but it doesn't seem to work, maybe I need to ask Buddha for some help;)
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