A life less lived

The house is starting to look festive. A tree would be the finishing touch. With everything going on last year we didn't get one. Autumn is looking forward to getting one, this will be Aiden's first. I love the smell and decorating it. Growing up we never had one. It's still a novelty for me. Real beats fake any day even with the messy clean up. 

 Aiden seems to be coming along. Had questionable tests results lately that put a dark cloud over the holiday season. The hormone test I had done for growth factor came back low, the pediatrician was not worried but I have been trying to get ahold of Dr. Morris to discuss it. Haven't heard back from her ,it's been a few weeks. At our recent cardio visit they noticed what might be a new area of stenosis. The cardiologist said it was probably a miss read sine his BP came back normal. She said come back in 6 months but I want to retest much sooner. I called her after the appointment but she was at a conference. The misread thing is not sitting well, he had one open heart surgery and each cardio visit is nerve racking for me. I was just starting to relax when this new glib appeared. I hope it is only a misread. We are on month two of LCarnitine, I'd love to say he looks like superman but really haven't noticed much change. It does help with the constipation and I think it is boosting his appetite. Our IFSP meeting is in two weeks. This will be our last since by this time next year he will have aged out of E.I. I don't understand why they can't keep him until school age (5) . It will mean a whole new set of therapists and the end of home sessions. Seems like a long ways off but they get the ball rolling months before his third birthday.

I'm excited to say he has started labeling things. Today he pointed to and labeled fish,stars, doggie and cup. People other than myself are starting to understand him, another huge milestone. I love my mini man.